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Support for dealing with incontinence
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PostPosted: Mon Jan 12, 2015 8:46 am 
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Joined: Sat Jul 14, 2012 4:14 pm
Posts: 100
This is the about me I have on my personal blog: (Edited a bit, to shorten.)

Hello, my name is Scott, and physically, I am 38 years old. However, mentally and emotionally, I am 10 years old. I love being me, and anyone who does not like me for me, is missing out on the love i have for people. I had been in special needs throughout school, and had always been young for my age. Right now, I live with my physically disabled veteran father, who is helping me write this. I’ll let my Dad describe a bit about how I am, so you will better understand:

Quote:
Scott thinks and acts like the typical ten year old does. He still plays with toys, and does almost everything like a kid. He also sleeps like a kid does, positions and the needing to wear diapers (due to incontinence caused by pinched nerve and mental issues). He had been physically & mentally abused by his mother until he was six years old, then was sexually abused a few times by people from ages six to ten.

He had always been young for his age, even the schools had noticed that. He is also very emotional and very sensitive, and often cries in his sleep. He’s very affectionate, like he’d always been when he was a kid. Often, there are times when he does something or says something that is much like a kid, that we call it a “Kid moment.”

Scott can not hold down a job, and is often let go soon after getting the job. He tries his hardest, yet it never seems enough, and he gets rather upset about it. He is stuck having to try to act his age of thirty-seven, and I hate to see him doing it, as it is noticeable that it is hurting him having to do so. He does not like having to “Pretend he’s the grown up everyone expects him to be.”

_________________
Hello, my name is Scott, and physically, I am 40 years old. However, thanks to abuse, and being special needs, mentally and emotionally, I am equal to about 6-10 years old.


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PostPosted: Mon Jan 12, 2015 1:07 pm 
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Joined: Mon Feb 17, 2014 2:11 pm
Posts: 216
Location: England
Hi. I have been a member on this site for about a year now. I am quite seriously disabled now and go most places on four wheels. I wet the bed until I was about twenty so I guess I have been bladder incontinent most of my life. The reason for my dissabilty is all to do with my spine. I have an implanted high frequency stimulator with wires going down my spinal canal from a box in my right buttock which I have to charge up wirelessly every day. I used to cope with my incontinece by using diapers but last February we could cope no longer and I had my first Foley catheter inserted through my penis into my bladder. I have been poorly several times over the last 11 months with infections caused by the catheter. I thought I had sorted this out by taking antibiotics for three days before each catheter change but I got poorly last month and spent Christmas in hospital. I still have a lump in my testicles I am at the hospital this Thursday to see what is to be done about it. Apart from the infections the catheter has been a very positive thing in my life and I can't imagine life without it. This site is a very good place to share and read about others in a similar place and get advice about stuff. I really appreciate it.

4wheeldave.


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PostPosted: Mon Jan 12, 2015 11:20 pm 
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Joined: Sun Apr 06, 2014 2:50 pm
Posts: 687
Location: Oklahoma
Small world here. Another Okie.


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PostPosted: Tue Jan 13, 2015 2:21 pm 
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Joined: Sun Oct 20, 2013 3:45 pm
Posts: 1959
Location: North Carolina - Raleigh area
Hi all! This topic was a great idea.

I'm a 72-year male Vietnam veteran and military retiree who suffered extensive pelvic trauma as a result of a climbing accident many years ago. After pelvic reconstruction I was told that I probably would never walk again, but I was able to overcome that challenge.

Nonetheless, I was left with severe damage to the nerves controlling rectal sensing and the sphincter muscles. I usually have little or no warning of an approaching bowel movement. I was able to compensate for many years but eventually with age everything caught up with me and I am permanently bowel incontinent. I have been able to make the best of what sphincter control I have left by doing Kegel exercises, but that can only do so much, so I wear diapers 24/7.

Somewhat unusual for this group is that I use daily morning old-fashioned enemas (not Fleets) as a preventive measure to control my fecal incontinence - with my doctor's approval.

I have been having bouts of bladder incontinence, and at the current time I am double incontinent.

Recently I had a L3/L4/L5 fusion which appears to have been "successful," but I am left with considerable back pain.

I found this group when I first began to wear diapers 24/7 and was desperately searching for helpful information. I found the members here and the message archives to be a treasure trove of information and a source of inspiration! Thank you all.

My wife and I just completed a move to the Raleigh, NC area. I will keep my jdinvirginia name and email address as it is listed as contact information in several white papers I have written and which have been distributed in some support groups.

--John


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PostPosted: Tue Jan 13, 2015 4:19 pm 
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Joined: Sun Jun 23, 2013 10:22 pm
Posts: 497
Location: Western North Carolina
I guess I have put off with my intro long enough.

I am a 40 y/o male from North Carolina in the USA. I have a condition called interstitial cystitis which causes urgency, frequency pain. This condition seems to affect mainly women but I guess I am just lucky. This eventually lead me to be urinary incontinent which again is not a common symptom but again, I guess I just got lucky. I had symptoms for a few years before I got a firm diagnosis.
Unlike some of the other members here I never experienced bed wetting as a child and never had a problem with leaks till this started. When I first was seen I was treated for OAB and given a pill and sent on my way. It helped but my symptoms continued to get worst till about three years ago I began to have to wear either a pull on or tape on 24/7. It has been very hard to adjust to but I joined anothther forum and then later we all moved here. This forum has been a God send for me because it helps me see and feel I am not alone. We are out there and we need not feel like we are any less of a person just because of our underwear or the fact part of our body does not work like it used to.


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PostPosted: Wed Jan 14, 2015 6:49 pm 
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Joined: Mon Jul 28, 2014 7:49 am
Posts: 4
Location: MA
I'm a 66 year old male from Massachusetts who was sexually abused and tortured by a priest for quite some time when I was a teen.
My parents thought the world of my abuser and my efforts to seek help were routinely rejected. I was ordered to accompany him to his family's summer home to "do yard work" for him. My parents had no idea that the house was not occupied and that my innocence was repeatedly and profoundly assaulted by a warped, perverted, sadistic man.
The abuse resulted in urethral scarring and sphincter damage as well as rectal nerve damage and trauma. I have also been diagnosed with PTSD. For chronic leaking I used feminine pads and maternity pads for many years. In the 70s I started wearing the male external "appliances" that have been mentioned in earlier posts and have used external caths and the Afex system.

A post surgical MRSA infection led to chronic UTIs, severe prostatitis, and more leaking. A cystoscopy and other procedures
to investigate my problems just made things worse and now I reject all suggestions for more "studies and simple procedures". I wear Abena M3s most days with Suprima or Gary PUL pants and at night I use Abena M4s, 24/7s, Wellness or Molicares with The Gary pants. I have learned a lot from this site and appreciate the candid comments and suggestions. Thanks!


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PostPosted: Thu Jan 15, 2015 12:12 am 
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Joined: Mon Jan 27, 2014 1:29 pm
Posts: 850
Fran l, I'm so very sorry that you experienced that nightmare. I hope he got everything he deserves, and that your parents got their comeuppance, too. I hope that you have come through those horrors to experience some peace and happiness in life. This forum is a very open and caring community with compassion and good advice to share, and an eager willingness to do so.

Wetters


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PostPosted: Fri Jan 16, 2015 7:48 am 
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Joined: Wed Jul 09, 2014 3:46 am
Posts: 381
Location: UK
Hi all

I am a 37 male in the UK and my incontinence (not found out) issues started when I had a medical trauma that left me with a problem whereby the message to go to the loo did not reach the brain on time. As a result I was tied to fixed regular loo breaks during the day. I officially found out last year that I have a type of urge incontinence that I will have to live with the rest of my life. Finding out was a shock and I then took the massive decision to wear diapers 24/7. I now have a life after so many years this was one of the best decisions I made. The other decision was to join this community that has been absolutely fantastic.

Greenbank


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PostPosted: Fri Jan 16, 2015 4:44 pm 
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Joined: Fri Feb 14, 2014 3:55 pm
Posts: 52
Location: Washington State
Hi, my name is Matt. I am 36 years old, and live outside of Yakima, Washington. I'm married and am the father of an amazing 2 1/2 year old. i also have mild cerebral palsy. I used to wet the bed when I was little, and i continued to have mild problems with bed wetting for most of my life (light wetting every two months or so). I have been strugling with urge incontinence off and on for about three years. I've done numerous tests, and besides my urologists telling me that i have the bladder of a 70 year old, they haven't been able to find the cause. I'm guessing it is somehow related to my Cerebral Palsy. I did some research and found that about sixty to seventy percent of people with mild CP develop incontinence in thier 30's. So it seems to fit. I have been treating it with medications, Vesicare and Flomax. I'm trying to balance out the fatigue with the benefits. I will be completely dry if i take the full dosage of Vesicare, but have no energy for my son. i'm doing a half dosage. Which means i wet during the day about twice a week. I'm using cheap diapers during the day. Attends. Nighttime, I wet more often, Usually i wake up about to burst and soak myself before i can make it to the bathroom. I wear absorbency plus at night. It works, and lets me have more energy to spend with my son. I'm lucky, my wife is verry supportive about it. I haven't shared with and friends or family yet, but will probably share with my parents before long.


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PostPosted: Sat Jan 17, 2015 12:03 am 
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Joined: Fri Jan 16, 2015 11:14 pm
Posts: 1
Hi all,nice to meet you. I am dentist from UK.


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