Hi DP,
I am a novice at this compared to many on here, but I can still appreciate your frustration. I too, deal with inconsistency issues and a general uncertainty about where things are going. My urologist speaks in non-committal terms and phrases, ie: "we can try..." or "this
should help" etc. I had TUIP surgery in November which "should help over time" but hasn't thus far (and in fact, has made things worse in some ways.) I like my urologist and have a lot of faith in him, but I get the impression that sometimes, they just don't know...
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I guess, I would like someone to say this is as good as it's going to get. I can live with that. The uncertainty, unpredictability, inconsistency is what drives me a little nuts.
My wife and I had a similar conversation the other day. I was complaining about the frustration and the roller coaster this has been, and that I was tired of trying and hoping to improve the situation, just to have the rug pulled out from under me. And also, that I didn't want to keep wasting time trying to get better if I was just gonna be in diapers the rest of my life anyway. When she said that this may be as good as it gets and I should just quit trying and accept things, and if they got better, then great... it really took a weight off my shoulders. So while I'm certainly not the guy with the answers, I can at least empathize with you. Good luck and hang in there!