www.incontinentsupport.org

Haven't been on forums much these days as I have just been cruising along with life but do miss folks here and incontinence is still very much a part of my life, just better managed these days. I still have my SPC, that'll be with me for the rest of my days,for better or worse. There are some advantages like being able to go long periods without hitting a bathroom. Since I'm a full time wheelchair user I just use a night bag. And when it was placed they put it on the right side which is my amputated leg side, so I can't use a leg bag (something I didn't think about at the time it was placed. Woops). Ive had minimal infections since starting hiprex and taking viamin c and d mannose gummies daily. I had my monthly change today and am having a bladder ultrasound at the end of the month to make sure I don't have a stone or something because I have been having a lot of spasms (those damn things HURT!!)

Bowel incontinence is now something that's a part of my daily life. While I expected it to happen eventually (my docs warned me) its been a difficult adjustment. I still receive tranquility atns through medicaid and they work just fine for home, for my peace of mind I opt for Megamax or betterdry when I'm out. Being out and dealing with it is the hardest for sure. And honestly it can be exhausting to deal with daily sometimes.

Hope everyone is doing ok. This was always my favorite forum. NAFC is just riddled with spam posts and its honestly a huge turn off. I don't really do Facebook or anything these days.

Yep, some of us are still around although we do not post much. It is good to hear from you justj. It sounds like you are dealing with your challenges as well as could be expected for anyone. Good show.

I'm still managing my severe chronic constipation with daily old-fashioned large volume tap water enemas. I always can count on them to work and allow me to get on with my life until the next morning.

Obviously I am 24/7 in diapers but, due to some rashes, I now am "airing out" as much and often as I can,

--John

Add my best regards to your post. Clearly, you have become skilled in IC management, and a valuable resource for the rest of us. I check in almost daily, but do not always have much to write. Incontinence is a challenge; overcoming it should be an ego boost, but it is still embarrassing enough that such successes cannot be shared outside of this forum.