www.incontinentsupport.org

Hi

Would any one know of any other helpful Incontinence Facebook or Forum support groups as I have issues dealing with mine and find online support useful.

Thanks

Greetings

There are others but I have found this one the best, most knowledgeable and kindest.

Greenbank

While I have heard of ones on Facebook, I will never frequent them for privacy reasons. Occasionally, I visit the reddit r/Incontinence group, but mostly this group is the most helpful. Not a lot of new posts each day, but if you sift through the older threads, you will find a lot of practical knowledge.

When I was first experiencing IC, I dove into the fetish forums, because there were so many people there willing to give me opinions, always with lots of enthusiasm. I've learned since then that much of that is noise.

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- Tom

The problem with most online incontinence forums is that they quickly get ruined by a few (I think) members of the fetish crowd who seem to spend their whole day trolling those forums. The ones I used to use have either shut down or died off because they took over.

After a while you can spot those users a mile away, but I got manipulated a few times into trying to "help" someone who was actually a fetish fan using me for their own desires. It's very disappointing to put a lot of work into something to help another patient, only to discover the whole thing was a waste of your time. I think a lot of people gave up.

This is the best site I've found, and I have found it to be extremely helpful over the 13 years I've been managing heavy bladder incontinence.

When my first urologist tried several medications to help me, and they all failed, I panicked. In flailing around I chanced on folks from several hundred miles away, who patiently began to teach me what I would need to know to function as an incontinent. Much later they came out to me, asking if my wife and I would "join" them. When I refused, our relationship ended. Although I am not one of them, I nevertheless owe them much. I have a high opinion for the expertise of the folks here; I am glad that it has not been co-opted by the fetish crowd.