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Support for dealing with incontinence
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PostPosted: Sun Jul 01, 2018 8:19 am 
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Joined: Sat Nov 02, 2013 8:28 am
Posts: 219
It's almost 15 months since my surgery, and I'm still leaking. Sometimes it's minimal, and other times it's more significant. As a result, I'm still in diapers. I'm thinking that wearing a diaper will become my new normal. I'm getting somewhat use to wearing a diaper, and not as nervous/embarrassed having health professionals seeing me in one. In addition, I now have some heart issues to deal with. I have had several tests that indicate I have ventricular tachycardia. On Tuesday, I have a nuclear stress test to determine what is going on and the next course of action. As someone once told me, "getting old is not for sissies".


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PostPosted: Sun Jul 01, 2018 6:46 pm 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1844
Indeed it isn't. Ventricular tachycardia can be lethal, so stay on top of it; do what your doctors tell you, and diaper up, because this could be a bumpy ride.


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PostPosted: Sun Jul 01, 2018 9:55 pm 
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Joined: Sat Jul 02, 2016 11:34 pm
Posts: 146
Location: Jacksonville, FL
Yes ventricular tachycardia can be very serious. Get it check out as soon as possible.

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PostPosted: Mon Jul 02, 2018 3:41 pm 
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Joined: Sun Oct 01, 2017 8:16 am
Posts: 220
Location: Ohio
dp66 wrote:
"getting old is not for sissies".


I had my surgery about 8 months ago, and so far not much appreciable improvement, so I understand your frustration. As others have said, the V-tach is a more serious issue than wearing diapers. Good luck with your tests, and diaper up! No sense having additional worries about leaking on top of everything else. Hang in there, dp66

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"When you die, on your deathbed, you will receive total consciousness. So I got that goin' for me, which is nice."


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PostPosted: Sat Jul 07, 2018 8:29 am 
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Joined: Sat Nov 02, 2013 8:28 am
Posts: 219
Well, my nuclear stress test showed nothing too abnormal, but since my holter monitor and ecg did indicate some irregularities, I now will be having an angiogram. I believe that is a more inclusive test where a dye of some kind is injected through a catheter into an artery some where in the groin or arm. Again, having incontinence and wearing a diaper is raising my anxiety level. Has anyone had an angiogram, and if so how was it performed? What was your experience. I sure hope this test will give the cardiologists enough data to be able to make a more definite diagnosis.


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PostPosted: Sat Jul 07, 2018 9:52 am 
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Joined: Fri Feb 20, 2015 7:49 pm
Posts: 1404
Location: washington, dc
Hi dp66,
My good friend has been dealing with heart issues the last couple of years. I asked him about the test and here is what he said:
It was either similar or the same thing as the procedure I had to December so a little bit scary but ultimately very little recovery time

He actually found out he had had 2 heart attacks but has recovered very well. My old roommate also had that test done I believe. I sent him a text and if he has more info I'll let you know. Good luck with your test.


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PostPosted: Sat Jul 07, 2018 1:16 pm 
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Joined: Wed Feb 10, 2010 2:03 pm
Posts: 780
Location: U.S.
Hi Dp66,
I am going through something similar to you. My cardiologist thinks I could be going through random episodes of SVT. I wear an Apple Watch to track my HR. I’ve been having episodes where I start panting and breathing fast out of nowhere. It’s not anxiety. Before I got my watch, I could never see what was going on. It doesn’t happen all the time. It happened a few days ago. My watch alarmed at me. It noticed an abnormal heart rhythm over 120bpm with no corresponding physical activity. I looked at my watch and it went from 45bpm to 152bpm. So my heart was beating 2.5 times per second. And stayed there for half an hour. I felt sick and called my doctor. My cardiologist wants to do an event monitor for 2 weeks. I’m going in next week for fitting. They just needed approval from my insurance. I had a 24hr holter last year along with an echo and ANSAR test. They were fine. I have had numerous EKG’s showing tachycardia and alternating bradycardia. I’ve had HR’s as low as 30bpm and has high as 200+. I felt like I wanted to vomit. So needless to say, you’re not alone. My incontinence is the least of my problems. I just diaper up and carry on. Usually, to a doctors appointment....


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PostPosted: Sat Jul 07, 2018 5:51 pm 
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Joined: Wed Jul 09, 2014 3:46 am
Posts: 375
Location: UK
Hi All

To all of you that have posted here all the very best life can deal a cruel hand at times.

Look after yourself all and take care.

Best of wishes for hopefully stable times!

Greenbank


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PostPosted: Sat Jul 07, 2018 10:38 pm 
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Joined: Sat Nov 02, 2013 8:28 am
Posts: 219
Thanks for the support Greenbank. We are a complicated machine aren't we.


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PostPosted: Tue Jul 10, 2018 11:58 pm 
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Joined: Wed Feb 10, 2010 2:03 pm
Posts: 780
Location: U.S.
Dp66,
I know you’ve been going through some heart issues. As am I. I am having a LINQ implanted next Monday (7/16). It is an internal ECG that collects arrhythmia information for up to three years. It is done outpatient. The device is roughly 1/3rd the size of a AAA battery. People say you can feel it under the skin but it’s not really noticeable. The device provides a wealth of information to your cardiologist. My electrophysiologist told me there is nothing your heart can do that this device won’t see. Even when you’re sleeping. I have a button that goes with it. If I get into trouble, I can push it and it will notify my cardiologist. I have issues with Tachy/Brady Syndrome. My heart rate is chaotic. So they are using this to track it. A 24hr holter wasn’t enough. My other doctors wanted more information. Have you tried something like this?


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