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Support for dealing with incontinence
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Do you have a definitive diagnosis for your incontinence?
Yes 37%  37%  [ 19 ]
No 63%  63%  [ 32 ]
Total votes : 51
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 Post subject: Re: A simple question
PostPosted: Sat May 07, 2016 3:14 pm 
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Joined: Fri Feb 20, 2015 7:49 pm
Posts: 1103
Location: washington, dc
I have a recessed urethra and super tight bladder muscles. they couldn't even get a baby catheter in me when they did my urodynamics test. I'm seeing a new urologist the 23rd but I don't have much hope.


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 Post subject: Re: A simple question
PostPosted: Sat May 07, 2016 7:56 pm 
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Joined: Fri Jan 27, 2012 9:28 am
Posts: 88
I'm abstaining from the vote because I don't what to consider myself. I don't have total loss of control and it might just be considered weak muscles which is a diagnosis. If there is more to it then it hasn't been proprly diagnosed.
However this forum isn't really capable of getting a correct result. People who get a proper diagnosise have a better chance of geting cured, in which case they would stop visiting the forum. So we have a disproportionatly high percentage of people here who haven't gotten a proper diagnosis.


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 Post subject: Re: A simple question
PostPosted: Sun May 08, 2016 1:56 am 
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Joined: Sun Nov 14, 2010 1:05 am
Posts: 750
Location: "Wet Coast" B.C., Canada
Another with the diagnosis of 'Chronic Prostatitis', along with some strong suspicions of nerve damage in my spine from my 1995 MVA, back is a mess, so makes sense to me, when it goes out, it is much worse to deal with, thankfully not often though! Puffy

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Fighting the "Bladder Battle" since 1995


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 Post subject: Re: A simple question
PostPosted: Sun May 08, 2016 6:50 am 
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Joined: Wed Jul 09, 2014 3:46 am
Posts: 283
Location: UK
Hi

My incontinence results from a problem I have had from birth being that the part of the brain that processes the signals from the bladder is slow and reacts too late to the signal from my bladder and the resulting urge causes me to have accidents. The only way that I can control this is by timed toilet breaks but this only goes part of the way. The stress this causes with finding loos when out meant that I did not have a life. Having a diagnosis was great however I am still incontinent and this space gives me the support I need to live a diapered life to the full among fellow travelers on the journey.

Greenbank


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 Post subject: Re: A simple question
PostPosted: Sun May 08, 2016 9:07 pm 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1435
Doctors have told me that I have a neurogenic bowel and bladder. Like JD, the nerves to my pelvic floor do not work as intended. His cause was traumatic injury; in my case, the cause is a genetic disease. However, the neurogenic diagnosis is more like a garbage can: the doctors seem unable to find any other cause, so they attribute it to mal-functioning nerves.


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 Post subject: Re: A simple question
PostPosted: Sun May 08, 2016 9:55 pm 
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Joined: Sun Apr 06, 2014 2:50 pm
Posts: 663
Location: Oklahoma
They say it is neurogenic bladder brought on by a mini stroke I had years ago. To me is seems to be the catch phase along with OAB. in other words we really don't know what is going on, but here are some meds. Too bad the meds have too much of a side affect for me and don't work that well.


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 Post subject: Re: A simple question
PostPosted: Sun Aug 07, 2016 11:19 am 
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Joined: Tue May 31, 2016 1:31 pm
Posts: 34
My urologist has done numerous cystoscopies for a (urethral) stricture that started with me yanking out a catheter (I don't know how many times) after a head injury. I dealt with occasional sudden incontinence and on-going dripping after normal voiding, and some wet nights. However, when daytime accidents went from less than once a month to 3 or 4 times a day I was given a diagnosis of OAB. I thought it would have been the stricture at the root of the issue, but was told it wasn't. No real cause was discovered and I was told it would be permanent and that it would get worse over time. However, it cleared up - almost to the point it was 18 months before. That lasted about a month and now I'm having episodes daily. I don't wear as much protection at home or while I am at work, but any other time, I am wearing a diaper. I just do it and forget it, usually. To answer the question, though, I don't consider OAB to be a diagnosis of what is really going on. That being said, I am not going to use meds to deal with this.


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 Post subject: Re: A simple question
PostPosted: Sun Aug 07, 2016 5:47 pm 
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Joined: Wed Aug 19, 2015 11:49 am
Posts: 890
Location: Jacksonville Fl
"neurogenic" just means something isn't coordinating correctly- but they don't know what or why.
"over active" is a little more general and directly means they recognize something is happening but they don't know what or why.

Well, that's my interpretation of it any ways (based on 20 years and over a dozen urologists who all acted that way at least)


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 Post subject: Re: A simple question
PostPosted: Mon Aug 08, 2016 11:13 am 
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Joined: Wed Aug 03, 2016 3:04 pm
Posts: 207
I was recently diagnosed with OAB with urge incontinence. I don't really consider it a definitive diagnosis as OAB is just really a symptom complex with varying and often unknown (as in my case) causes.

I have early type 2 diabetes, I'm a bit overweight, I have sleep apnea, all things that may contribute to my problem but none of which are likely to be the actual cause. My blood sure isn't all that high and since this too was only recently diagnosed in the last few months I highly doubt it's the cause. Diabetic nerve damage usually takes quite a while to develop and mostly in people who don't control their blood sugar for a long time. Mine is only slightly high and is a recent thing. I'm working very hard on losing weight through diet and exercise and my doctor says I'll probably be able to control my sugar with that alone.

It's a little frustrating to not know WHY I have OAB but since incontinence is somewhat new to me (at least in terms of the symptoms being more often and more pronounced) and I've been hiding it for a long time. Finally getting seen by a specialist and getting at least a name for it was helpful but I'd like more answers.


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 Post subject: Re: A simple question
PostPosted: Mon Aug 08, 2016 1:01 pm 
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Joined: Sat Jul 02, 2016 11:34 pm
Posts: 139
Location: Jacksonville, FL
MikeJames

I am a diabetic, overweight, have sleep apnea. The main reason I have urgency incontinence is that I have a large prostate. It might be a good idea to have yours checked. This could be the reason for your incontinence.

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