Patrick wrote:
Folks who have not dealt with it cannot understand the combination of abdominal pain plus incontinence. We cannot take opioids because they slow the GI system even more, so the advice to grin and bear it leads to even more pain and disability. But overdosing on Tylenol (acetaminophen) can be equally hazardous. I wish you success in your effort to find a medical professional who understands and can offer effective assistance.
There are days where I cannot even stand up straight until my bowels move. I have had such a hard time sleeping because of gut pain that some days this month I have been in bed for 12+ hours just to get enough sleep to function.
No. My GI doctor does not get it. Tomorrow I have therapy and then on Thursday, I have a urology appointment. I will be talking to my therapist about the past week but hope to get somethings working with urology to help find answers to the daytime issues. I know she is not going to be happy with my nighttime issues still but I am not worried about that yet.
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