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PostPosted: Fri Mar 27, 2015 5:53 pm 
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Joined: Mon Dec 17, 2012 10:35 am
Posts: 195
Location: Europe
I wonder if anyone has any knowledge of dealing with this combination.
How do you combine a colostomy bag and a diaper...
During my battle with IBS-c, I have had to face that this is one of the scenarios I might meet.
I am a little beter at the moment, and I have been able to work through the main trauma that caused the IBS.
Still, it has made me think, and it might be useful if someone had knowledge about dealing with this combination.

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PostPosted: Sat Mar 28, 2015 6:08 am 
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Joined: Mon Feb 17, 2014 2:11 pm
Posts: 216
Location: England
I know it's not the same but I have worn a diaper over a urethral in dwelling catheter with no problems at all. I now have a suprapubic catheter which is a catheter inserted through a hole in my pubic area below the navel and again if needed I would wear a diaper over all this.
I am sure if you needed to you would be able to sort it out just fine you would need to experiment and find out what best works for you.

4wheeldave.


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PostPosted: Thu Apr 09, 2015 12:33 am 
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Joined: Sat Apr 30, 2011 3:59 pm
Posts: 92
Optimist, do you have a physician diagnosis of IBS-C, as in irritable bowel syndrome, constipation predominant, as opposed to some other GI condition or multiple GI conditions? Colostomy is *never* an appropriate medical option for any type of IBS alone and *no* reputable doctor will suggest it. I hope that no one has and that you simply have a misconception that I can clear up or there is something else about your medical history which you have not shared (and you do not have to) that makes consideration of a colostomy appropriate.

I have IBS myself, although I primarily visit this board for partial bladder incontinence which is a secondary effect of it, medication and other issues. I co-own an advocacy and awareness site and I also am one of several co-admins of an online science-based support group started by someone else. I am not a medical professional, but have made the effort to learn from reputable sources over the several years since my own onset, and communicate directly. periodically with several of the top internationally known expert researchers and clinicians in the field, organizations, and/or people who communicate with them directly.

IBS is the most common functional gastrointestinal disorder, which means there is nothing structurally or metabolically wrong with the colon itself, but there is a dysfunction in the communication between the brain and the digestive tract and lowered pain threshold as perceived by the brain, dysregulation of neurotransmitters and many other factors, some known, some not yet completely understood scientifically although there is active research all over the world into various aspects. The colon itself is normal. No one will remove a colon with no evidence of disease. Furthermore, because of the pain threshold, neurotransmitters, etc., even if they did, the characteristic pain/discomfort of IBS would not go away. Furthermore, even if it did go away, if something went wrong, one cannot put a colon back and at this point, medicine is not able to transplant/regrow another one either. It is drastic, invasive, last resort surgery even for conditions for which colostomies are appropriate. Lastly, colostomies, while often welcomed by some people who are otherwise struggling with other intractable GI issues, they are not a panacea. People who get them trade some problems with their digestive tracts for other issues involved with permanent ostomy devices. Again, they are not appropriate at all for someone with IBS (irritable bowel syndrome, which is not the same thing as inflammatory bowel disease or IBD, in which the need for colostomies is fairly common because the disease can sometimes damage the colon beyond reasonable treatment.) If anyone is actually suggesting a possible colostomy for IBS, please find another physician immediately, because he or she is a quack. If you have any further questions, I would be happy to point you to peer reviewed, evidence based resources in several countries of the English speaking world.


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