| www.incontinentsupport.org http://incontinentsupport.org/phpBB3/ |
|
| gastroparesis http://incontinentsupport.org/phpBB3/viewtopic.php?f=14&t=2348 |
Page 2 of 2 |
| Author: | Patrick [ Tue Feb 21, 2017 9:50 am ] |
| Post subject: | Re: gastroparesis |
I neglected to mention that my spinal injury (two fractured vertebrae plus three compressed discs) is caused by Marfan's Syndrome, a genetic disease. I have not found a neurosurgeon who would touch it. I have not had the smart pill, I guess because the gastric emptying tests have given my doctors everything they seem to want to know about my situation. |
|
| Author: | Don [ Sun Aug 20, 2017 12:42 pm ] |
| Post subject: | Re: gastroparesis |
Patrick, I have an autonomic neuropathy. I am having a gastric emptying test soon at Mayo Clinic. They are evaluating my digestive system dysfunction. I have GI symptoms of nausea, GERD, early satiety, dysphagia, bloating, and bowel incontinence. I had a swallow study and anorectal monometry last week. The GI put me on some meds to start out with. I'm am also have an endoscopy with dilation of my esophagus. I had this done once before. So far, Mayo has been pretty good at taking care of my condition. After a few visits, I had a name for my disorder, and a known cause. The GI said she can't cure it, but she can at least make it better. As for the neuropathy, there is no known cure. |
|
| Author: | Patrick [ Mon Aug 21, 2017 7:00 am ] |
| Post subject: | Re: gastroparesis |
Don, Your situation sounds similar to mine. It is exasperating. Sometimes I want to scream and lash out, but what good would that do? I am grateful for diapers and for the folks on this site. I really need to vent from time to time, just blow off steam when my situation has become difficult. I hope my contribution here justifies my use of this site for venting. Keep up the good work. Knowing that we are not alone can make a huge difference. |
|
| Author: | wayne [ Thu Dec 15, 2022 11:51 am ] |
| Post subject: | Re: gastroparesis |
I have had suspected GP episodes in the past so I have been taking mental notes. Two nights ago I had another, which included three hours of severe pain. The first episode happened when I was up at a remote cabin. I felt a need to use the outhouse, so I got out of the sleeping bag and as I left the cabin I felt nauseous and puked in the grass. I very soon afterwards experienced some diarrhea before I got to the outhouse, which was inconvenient. More recently, I have had two episodes at home where I got nauseous after dinner. Once I threw up and another time I got over it, after which I was totally fine. Up until this point, I never had any associated pain. But two nights ago, I had two Hawaiian pizza slices and one beer. Then about bed time I experienced some serious back pains. Later on it was evident that I was having intestinal cramps which were bad. After throwing up, I spent the next few hours trying to reduce the pain by sitting, lying on the couch and walking around. Nothing much worked but eventually it subsided just enough that I could lie in bed. I was so tired that I eventually fell asleep, which was merciful. I woke up fine in the morning. I was worried I might have low glucose in the morning but that was "normal". I've had discussions with another fellow who experiences these (and much more) at a different site and I am convinced that I sometimes experience gastroparesis also. My wife doesn't believe it, thinking it was the flu or some such. In all of these cases, I have been fine stomach-wise after it is over, so I discount the flu. Apparently GP is prevalent with diabetes, with which I struggle (and am IC because of). There seems to be some common elements to these episodes:
So now I am resolved to start keeping a log. After the last episode (that I don't want to repeat), I need to log these for the benefit of the doctor(s) and for myself. There is some good information here https://www.nhs.uk/conditions/gastroparesis/ about the disease. I generally don't drink but because of my kidney stone history, the nursing staff encouraged me to have a beer now and then to flush the kidneys out. My take away from all this is that I will have to time it better if I continue with this and keep to smaller meals. |
|
| Author: | Patrick [ Thu Dec 15, 2022 6:27 pm ] |
| Post subject: | Re: gastroparesis |
Frequent smaller meals are a recommended GP management technique. Vomiting and diarrhea are common among GPers. GP is commonly found among diabetics, which makes beer problematic. My problem is that I vomit in my sleep; I waken with a start, unable to breathe. Good luck and let's keep this conversation going. |
|
| Author: | wayne [ Fri Dec 16, 2022 11:33 am ] |
| Post subject: | Re: gastroparesis |
Patrick wrote: My problem is that I vomit in my sleep; I waken with a start, unable to breathe. That's terrible. I hope it is a rare event for you! |
|
| Author: | Patrick [ Fri Dec 16, 2022 6:37 pm ] |
| Post subject: | Re: gastroparesis |
As long as I can manage my GP effectively, I do not have this trouble. However, when I relax my management, even a little, this can happen. |
|
| Page 2 of 2 | All times are UTC - 5 hours [ DST ] |
| Powered by phpBB® Forum Software © phpBB Group http://www.phpbb.com/ |
|