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PostPosted: Sat Mar 12, 2016 1:14 pm 
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Joined: Sun Feb 23, 2014 11:33 pm
Posts: 512
Gamma knife is a super focal technology. Seems like your old doctor just nuked your whole head.


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PostPosted: Sat Mar 12, 2016 3:41 pm 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1836
Yeah, that's exactly what he did. Thanks everybody for your support. Times such as this, I need it.


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PostPosted: Sun Mar 13, 2016 5:31 am 
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Joined: Mon Feb 17, 2014 2:11 pm
Posts: 216
Location: England
You take care mate.

4wheeldave.


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PostPosted: Thu May 12, 2016 10:49 am 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1836
Our recent discussion of AB/DL folk has me in a Chinese quandary. Last week my gastroenterologist's nurse practitioner called me, and, in the gentlest possible tones, told me that the way I was managing my stomach paralysis could kill me. That got my attention, for sure. I was proud of how well I was managing, that I was minimizing my weight loss, and eating most of the food my family and friends ate. However, to do that, I was overdosing on erythromycin, which could lead to a C Diff infection, which is nearly always fatal. That's what killed my mother-in-law, who was more of a mother to me than my biological mother. In order to reduce my dependence on erythromycin, periodically I must go on a liquid/low residue diet, (Boost, Ensure, and electrolyte beverages and baby food), which I cordially hate. Which is where the AB/DL lifestyle enters the picture. There is no way I could enjoy living on infant food, including the adult form of formula, which is what is being forced on me. AB/DL? Over my dead body.


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PostPosted: Thu May 12, 2016 12:00 pm 
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Joined: Mon Jan 27, 2014 1:29 pm
Posts: 850
Instead of your dead body, and not AB/DL. The latter is a lifestyle choice, your medical necessity is not. Patrick, I'm happy to know that your medical team is paying attention. The bright side: the liquid/low-residue diet is an intermittent scenario.

W.


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PostPosted: Thu May 12, 2016 1:52 pm 
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Joined: Wed Aug 19, 2015 11:49 am
Posts: 890
Location: Jacksonville Fl
I agree with Wetters, and can certainly say that what is being forced onto you is NOT even remotely ABDL (which I will not talk about on the open forums as I have been asked).

What you have is a very unfortunate set of circumstances that I am sorry to hear about. Vent away, and I hope your body will adjust to your new diet quickly while also staying alive and health.


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PostPosted: Thu May 26, 2016 7:58 pm 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1836
Hooray!

Eight days ago the nurse practitioner called me and gave me a chewing-out. She said that I was taking so much erythromycin that I was making myself vulnerable to a c diff infection, that I should go on a liquid diet immediately, and stay on it until instructed otherwise. Earlier today I had an appointment with my local family physician, who told me that the nurse practitioner did not know what she was talking about. She showed me a multi-page readout on erythromycin; nowhere did it say that a c diff infection was possible. She told me that I was managing my gastroparesis far better than that nurse knew, and I should keep up the good work.

Thanks for your support. It means more than you know.


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PostPosted: Fri May 27, 2016 11:48 am 
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Joined: Wed Aug 19, 2015 11:49 am
Posts: 890
Location: Jacksonville Fl
That's great news! Now at least you won't have to worry about a liquid diet or its "rear" effects.


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PostPosted: Mon Aug 01, 2016 3:04 pm 
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Joined: Thu Aug 20, 2015 9:20 pm
Posts: 155
Liquid diets really suck.
I have had to go on a liquid diet for colonoscopy and that wasn't fun at all

But the occasional liquid diet cleanse is nowhere as bad as the prep work for colonoscopies and such.

I am glad for you Patrick that you can enjoy some good food though. :)


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PostPosted: Mon Aug 01, 2016 5:27 pm 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1836
Thanks everybody. Periodically I still adopt a low-residue diet; however, I use it for the minimal number of days. The Golitely prep for a colonoscopy is similar to the low-residue diet.


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